摘要/Abstract

摘要： 目的·探索家庭负担量表（Family Burden Scale，FBS)的自评方式用于神经性厌食症患者照料者负担评定的信度和效度。方法·纳入2017年7月—2019年7月于上海交通大学医学院附属精神卫生中心进食障碍诊治中心诊治的女性厌食症患者103例及其照料者(父母)148人。记录患者及照料者的一般人口学资料，患者的病程及体质量指数(body mass index，BMI)，以及照料者每日照顾患者的时间。照料者接受FBS、贝克焦虑量表（Beck Anxiety Inventory，BAI）、贝克抑郁量表（Beck Depression Inventory，BDI）、健康调查简表（the MOS item short from health survey，SF-36）的自评。随机数字法抽取1/3照料者进行FBS他评。通过计算Cronbach's α系数、自评 - 他评一致性、夫妻间（41对夫妻）一致性来评定量表信度；通过计算FBS自评得分与病程、患者BMI、每日照料时间、BAI评分、BDI评分，以及SF-36的精力、社会功能、情感职能、精神健康因子分的相关性来评定量表的效度。结果·FBS的Cronbach's α系数为0.921，自评 - 他评相关系数r=0.705（P=0.000），夫妻间一致性评分的相关系数为r=0.547（P=0.000）。FBS总分与病程、%BMI及每日照料时间无相关性；与BAI得分、BDI得分，以及SF-36的精力、社会功能、情感职能、精神健康因子分呈现一定相关性（均P<0.05)。结论·FBS的自评方式应用于评估厌食症患者的照料者负担时显示出较好的信度，但其效度并不理想，需要进一步修订。
关键词: 神经性厌食症, 照料者负担, 家庭负担量表, 贝克焦虑量表, 贝克抑郁量表, 健康调查简表
Abstract:
Objective · To explore the reliability and validity of self-rated Family Burden Scale (FBS) evaluating caregiver burden in families of the patients with anorexia nervosa (AN). Methods · The study included female AN patients (n=103) treated in the Eating Disorder Center of Shanghai Mental Health Center, Shanghai Jiao Tong University School of Medicine from Jul. 2017 to Jul. 2019 and their caregivers (parents, n=148). General demographic information of the patients and their caregivers, the course of illness and body mass index (BMI) of patients, and the time each caregiver spent in caring for the patient per day were recorded. FBS, Beck Depression Inventory (BDI), Beck Anxiety Inventory (BAI), and the MOS item short form health survey (SF-36) were self-rated by the caregivers. One-third of the caregivers were selected by random number method for FBS rating by specialists. The reliability of the scale was evaluated by calculating Cronbach's α coefficient, self-rating and other-rating consistency and the consistency between husband and wife (41 couples). The validity of the scale was evaluated by calculating the correlation of FBS score with the course of disease, patients’ BMI, the time spent in caring per day, scores of BAI and BDI, and vitality, social function, role-emotion and mental health domain of SF-36. Results · The Cronbach's α coefficient of FBS was 0.921, the correlation coefficient between self-rating and other-rating by specialists was 0.705 (P=0.000), and the correlation coefficient of consistency score between couples was 0.547 (P=0.000). FBS score showed no correlation with the course of disease, %BMI and the time spent in caring per day. Scores of BAI and BDI, and vitality, social function, role-emotion and mental health domain of SF-36 showed low correlation with FBS score (all P<0.05). Conclusion · Self-rated FBS shows good reliability when used in families of AN patients. The validity is not as ideal, which suggests further revision of the scale.
Key words: anorexia nervosa (AN), caregiver burden, Family Burden Scale (FBS), Beck Anxiety Inventory (BAI), Beck Depression Inventory (BDI), the MOS item short form health survey (SF-36)


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