摘要/Abstract

摘要： 目的·调查非霍奇金淋巴瘤患者自我感受负担现状，并分析其相关因素。方法·采用方便采样法，选取2019年1—10月于上海交通大学医学院附属瑞金医院住院治疗非霍奇金淋巴瘤患者169例及照顾者为研究对象。采用一般资料调查表、社会支持评定量表、抑郁自评量表、Zarit照顾者负担量表及自我感受负担量表进行问卷调查，并分析自我感受负担量表得分的相关因素。结果·非霍奇金淋巴瘤患者自我感受负担量表平均得分为（28.95±11.27）分，其中经济维度得分最高［（3.13±1.37）分］；多元回归分析显示，家庭人均月收入（P=0.001）、KPS（Karnofsky performance status）评分（P=0.027）、抑郁自评量表评分（P=0.006）、Zarit照顾者负担量表评分（P=0.000）是非霍奇金淋巴瘤患者自我感受负担的相关因素。结论·非霍奇金淋巴瘤患者自我感受负担处于轻中度水平，其中经济负担最重；家庭人均月收入低、生活自理能力差、有抑郁症状、照顾者负担重可加重非霍奇金淋巴瘤患者的自我感受负担。
关键词: 非霍奇金淋巴瘤, 自我感受负担, 抑郁, 社会支持, 照顾者负担
Abstract:
Objective · To investigate the current status of self-perceived burden of the patients with non-Hodgkin's lymphoma (NHL) and analyze the related factors. Methods · A total of 169 NHL patients who were hospitalized in Ruijin Hospital, Shanghai Jiao Tong University School of Medicine from Jan. to Oct., 2019, and their caregivers were enrolled by convenience sampling method. The general information questionnaire, Social Support Rating Scale (SSRS), Self-rating Depression Scale (SDS), Zarit Caregiver Burden Interview (ZBI) and Self-perceived Burden Scale (SPBS) were used to investigate, and the factors related to the score of SPBS were analyzed. Results · The average score of SPBS was 28.95±11.27, while the score of economic burden was the highest (3.13±1.37). Multiple regression analysis suggested that the family income per month per person (P=0.001), Karnofsky performance status (KPS) (P=0.027), SDS score (P=0.006) and ZBI score (P=0.000) were associated with the SPBS score in the NHL patients. Conclusion · The overall self-perceived burden in the patients with NHL is mild-to-moderate, but the economic burden is not neglectable. Low monthly income, poor ability of self-care, depressive symptoms and heavy burden of caregivers can aggravate the self-perceived burden of the patients with NHL.
Key words: non-Hodgkin's lymphoma (NHL), self-perceived burden, depression, social support, caregiver burden


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